Tinta Si Isteri Mekanik: July 2010

28 July 2010

Saya tau saya boleh..

They can because they think they can.
Virgil


Bye,

27 July 2010

Blockage

I have a lot to write but i am having writer's block right now. harhar writer ke? merapu ada lah.


It's just that I haven't had time to roll out my laptop and start typing unless I am at the office.


Right now, I mean for this whole weekday, we, as in me and hubby, are staying in PJ to help my father. He has been discharge from PPUM on Saturday afternoon, and now recovering at home.


Taking care of him starts from the moment he wakes up, ie bathing, breakfast, medicine, food, toilet thingy big or small, anything that he needs help. It is not that he is invalid, he's not. Just that when he walks, he need somebody to help him stabilized his body before he takes a step, helping him when naik tangga turun tangga, that kind of care.


He is sooo used doing things on his own, bila banyak kena tolong, dia rasa helpless. Selalu cakap tak payah susah-susah. But I always tell him, "Ini tanggungjawab kami sebagai anak-anak. Just let us take care of you for the time being".


Bye,

24 July 2010

Allah Maha Pengasih Lagi Maha Penyayang

Alhamdulillah, kami sekeluarga mengucapkan syukur kepada Allah yang Maha Esa kerana masih meminjamkan kami insan tersayang yang kami panggil ayah.
Bye,

22 July 2010

Don't Let Obstacles Stop YOU

Bye,

17 July 2010

Stevens-Johnson Syndrome

Stevens-Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis


Stevens-Johnson syndrome and toxic epidermal necrolysis are two forms of the same life-threatening skin disease that cause rash, skin peeling, and sores on the mucous membranes.

  • Stevens-Johnson syndrome and toxic epidermal necrolysis usually are caused by drugs or a bacterial infection.

  • Typical symptoms for both diseases include fever, body aches, a flat red rash, blisters that break out on the mucous membranes, and small areas of peeling skin (Stevens-Johnson syndrome) or large areas of peeling skin (toxic epidermal necrolysis).

  • Affected people are hospitalized in a burn unit, given fluids and sometimes corticosteroids and antibiotics and all suspected drugs are stopped.

In Stevens-Johnson syndrome, a person has blistering of mucous membranes, typically in the mouth, eyes, and vagina, and patchy areas of rash. In toxic epidermal necrolysis, there is a similar blistering of mucous membranes, but in addition the entire top layer of the skin (the epidermis) peels off in sheets from large areas of the body. Both disorders can be life threatening.

Nearly all cases are caused by a reaction to a drug, most often sulfa antibiotics; barbiturates; anticonvulsants, such as phenytoin and carbamazepine ; certain nonsteroidal anti-inflammatory drugs (NSAIDs); or allopurinol . Some cases are caused by a bacterial infection. Occasionally, a cause cannot be identified. The disorder occurs in all age groups but is more common among older people, probably because older people tend to use more drugs. The disorder is also more likely to occur in people with AIDS.

Symptoms

Stevens-Johnson syndrome and toxic epidermal necrolysis usually begin with fever, headache, cough, and body aches. Then a flat red rash breaks out on the face and trunk, often spreading later to the rest of the body in an irregular pattern. The areas of rash enlarge and spread, often forming blisters in their center. The skin of the blisters is very loose and easy to rub off. In Stevens-Johnson syndrome, less than 10% of the body surface is affected. In toxic epidermal necrolysis, large areas of skin peel off, often with just a gentle touch or pull. In many people with toxic epidermal necrolysis, 30% or more of the body surface peels away. The affected areas of skin are painful, and the person feels very ill with chills and fever. In some people, the hair and nails fall out. The active stage of rash and skin loss can last between 1 day and 14 days.

In both disorders, blisters break out on the mucous membranes lining the mouth, throat, anus, genitals, and eyes. The damage to the lining of the mouth makes eating difficult, and closing the mouth may be painful, so the person may drool. The eyes may become very painful, swell, and become so filled with pus that they seal shut. The corneas can become scarred. The opening through which urine passes (urethra) may also be affected, making urination difficult and painful. Sometimes the mucous membranes of the digestive and respiratory tracts are involved, resulting in diarrhea and difficulty breathing.

The skin loss in toxic epidermal necrolysis is similar to a severe burn and is equally life threatening. Huge amounts of fluids and salts can seep from the large, raw, damaged areas. A person who has this disorder is very susceptible to organ failure and infection at the sites of damaged, exposed tissues. Such infections are the most common cause of death in people with this disorder.

Treatment

People with Stevens-Johnson syndrome or toxic epidermal necrolysis are hospitalized. Any drugs suspected of causing the disorder are immediately discontinued. When possible, people are treated in a burn unit and given scrupulous care to avoid infection. If the person survives, the skin grows back on its own, and unlike burns, skin grafts are not needed. Fluids and salts, which are lost through the damaged skin, are replaced intravenously.

Use of corticosteroids to treat the disorder is controversial. Some doctors believe that giving large doses within the first few days is beneficial, whereas others believe that corticosteroids should not be used. These drugs suppress the immune system, which increases the potential for serious infection. If infection develops, doctors give antibiotics immediately.

In many cases, doctors give intravenous human immunoglobulin (IVIg) to treat toxic epidermal necrolysis. This substance helps to prevent further immune damage to the skin and further progression of blistering.
Notes: from here

16 July 2010

Stevens-Johnson Syndrome

Terima kasih semua atas doa kalian. Memang terharu sungguh, di saat-saat dugaan mendatang, masih ada yang sudi memberikan kata-kata semangat dan doa.

Alhamdulillah, keadaan ayah semakin stabil. Cuma adakalanya, sedikit merosot dan mengundang gundah di hati. Hanya tawakkal kepada Allah sahaja dapat dipohon.

Ayah sakit apa?

Banyak yang bertanya sedemikian. Ramai yang ingat ayah sakit jantung, sebabnya dalam tahun 2000 dia kena mild stroke. Kemudian dalam 2006 (betul-betul masa wakil hubby nak merisik saya) dia muntah-muntah dan tekanan darah agak tinggi menyebabkan dia dimasukkan ke hospital. Tapi setelah 4 hari tekanan darah ayah tinggi, maka doktor menyarankan beliau menjalani 'angiogram' dan kemudiannya 'angioplasty'. Setelah itu, beliau meminta doktor untuk refer ke Institut Jantung Negara (IJN) untuk rawatan susulan.

Sekarang ni, beliau dikira sebagai pesakit luar di IJN dan mungkin dianggap sebagai pesakit yang kurang berisiko sebab beliau tiada masalah yang serius. Hanya perlu follow-up treatment sahaja setiap 3-4 bulan.

Ingat tak saya ke IJN dalam bulan Jun lalu? Saya ada sebut yang ayah akan ke IJN pada 17 Jun 2010 semula untuk temujanji dengan doktor. Ayah pergi dengan adik saya, sebab mak masuk hospital dan saya ada Audit SIRIM. Untuk kali ini, ayah ada dapat a few ubat baru termasuk ubat gout iaitu Allupuriol.

Dari Wikipedia Allopurinol is a drug used primarily to treat hyperuricemia (excess uric acid in blood plasma) and its complications, including chronic gout.[1]

Memang masa blood test ayah hari tu, uric acid dia agak tinggi, borderline dan doktor pun prescribed him Allupurinol.

Beliau mula makan hari Jumaat (18 Jun 2010) mengikut dos yang ditetapkan. Selepas 3 hari, beliau rasa badan macam tak sesuai dengan ubat ni, maka beliau KURANGKAN dosnya, tetapi TIDAK MENGHENTIKAN pengambilannya. This is where he made the life-threatening mistakes. He should have stopped taking the medicine and went to IJN for further action.

Mula demam pada Jumaat, 25 Jun 2010. Went to UMMC for blood test to eliminate dengue, H1N1 and others illnes related to high fever and body aches. But on Monday, the fever did not subside and he felt that the fever was getting higher. When I called home and asked him whether he wanted to go for further check-up, he said yes. So we went to his favorite doctor and the doctor cepat-cepat suruh ke hospital. When asked, it is not H1N1, but maybe dengue.

Went home for a while for him to rest a bit. After Zohr and light lunch, we went to Sime Darby Healthcare (SJMC). Waited for his turn to see the Medical Officer (MO). While the nurse was checking his blood pressure, she noticed his was low (80/40), but she ignores it and switched to manual blood pressure machine. She said 110/60 pulak.

Masa dia nak ambil wheelchair, tiba-tiba badan ayah macam mengeras, and his mouth macam senget sikit, macam kena stroke. Panic, i shouted for the nurse and she came with a stretcher and with help from a nurse and a male staff, they managed to angkat ayah to the bed and wheeled him to Emergency Room (ER).

Dalam ER tu, started with mesin BP, oksigen, heart machine. Memang rendah bacaan, BP was 80/40 with pulse rate 35-40. Called? or SMS my brother, and when they called, I was hysterical. Tangan dah menggigil-gigil, air mata memang mengalir non-stop. Semua jauh, Ijah@Cyberjaya, Abang@Parlimen, Umar@MidValley, memang akan ambil masa nak tiba.

I called hubby, menangis-nangis suruh dia datang SJMC cepat. If anything happened, I can't face it alone. Nasib baik dia familiar dengan SJMC sebab mak baru hospitalised a week ago. He came and I cumbled..hehehe..sowi sayang..

Masa tu, ayah macam blur aje. Bila tanya, dia kata okay, takde pape. Tapi kejap-kejap macam mamai. Kesian sangat tengok dia. Then, I kena halau dari ER tu, but still I can see him la..sebab saya duduk kat pintu ER tu. Pintu tu automatik, so bila dia nak tutup aje, I dekatkan badan so pintu tu akan terbuka.

2 hours in ER, they wheeled him to High Dependency Unit (HDU). A doctor analyzed his prescribed medicine's list and noted that he was overdose on blood pressure medication and maybe hypersensitive to Allupurinol.

So, sekarang ni beliau didiagnosis sebagai pesakit Steven Johnson Syndrome dan 

Toxic epidermal necrolysis. Combined with his age and health factor, his mortality or chances to survive is 50:50. 

12 July 2010

Ayah setakat hari ini

His heart is getting weaker. Sampai IV tu kena masuk through leher. Then, doctor discover his lung didn't get enough oxygen, so another equipment kena letak.

Semalam, dia memang tak banyak cakap. Penat katanya, even the nurses pun perasan ayah tidur aje. Makan pun kurang. Minum pun kena paksa.

Entahlah, Umar cakap ayah macam orang merajuk. Adakalanya, bila menantu yang tanya, dia akan jawab dia nak, ie "Ayah, minum sikit eh?", he will nod. Bila anak-anak dia tanya, terus geleng.

Malam ni, turn saya berjaga di hospital. Semasa di PPUM ni, tak pernah lagi jaga malam, hanya masa SJMC aje saya tidur 2 malam.


Bye,

09 July 2010

Ya Allah...

I just received an update on my father's condition. Overall, his health condition is deteriorating. The doctor is concerned about his concentrated urine. Hence, we have to make sure he drinks a lot.

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Dan beliau dah mula berpesan, kemas rumah, vacuum semua, meja makan letak tempat lain, nanti ramai datang ZIARAH.

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I know we have been preparing, but still, hearing the news still shocks me, in particular.

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Maybe because I am the closest to him? My aunt selalu cakap saya anak manja ayah, but I don't think it's true. Semua rapat dengan ayah, especially bila dah grown up ni. Masa kecil, ayah memang garang, but it make us tough and brave hence the men/women that we are now.

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I just wish Ya Allah, agar semua dapat berada bersama beliau, membnimbing beliau ke arah Pencipta-Nya dengan betul, dengan penuh keimanan dan taqwa. I hope it will be easy, for him and for us.
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Ya Allah, tenangkanlah hati kami, tabahkan dan kuatkan semangat kami dalam mengharungi situasi ini.


Bye,

Stabil

Syukur alhamdulillah, ayah dah stabil. Tetapi recovery processnya sangat panjang, lebih kurang 1 bulan.


Bye,

03 July 2010

Keadaan Ayah Kritikal

Ayah is in pain. Great deal of pain.

and i am trying my best not to show my grief in front of him, but how can i? crying inside out.

he is my best friend. i can share everything with him. even masa my hubby tengah masuk jarum pun, he was the first to know.

oh allah, have mercy on him. please ya allah, lessen his pain.

dan ya allah, tabahkanlah hati ku ya allah, dalam menghadapi dugaan ini. kuatkanlah kami sekeluarga, satukanlah kami, tenangkanlah hati-hati kami dalam menempuh dugaan ini.

mudahkanlah urusannya, murahkanlah rezekinya, pimpinlah kami agar kami dapat memimpin ayah ke jalan-Mu semasa di akhir usianya.

ya allah, aku redha ya allah.

aku menangis bukan kerana tidak dapat menerima takdir-Mu ya allah, hanya menyatakan kesedihanku.

hanya Engkaulah yang tahu perasaan ini ya allah. hanya kepadaMu aku bergantung harap, hanya kepada Allahlah aku berserah.



Bye,

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